Last week I went to Arizona to visit Stephanie and Christian, both recovering from major trauma. I’ve had a week now to reflect on what I saw and what I learned, and most of it is very sweet and tender to me, and only a little bit horrible. Surprising to me, however, is what has stayed with me the most is the idea of perspective. I haven’t been able to get it off my mind.
Everyone who had gone down to visit them before prepared me for what I was going to see. For the sights, feelings, smells, and all the logistics, but walking down the winding hallways through the burn unit, I knew that no one could fully prepare me for what I was about to see. Despite understanding that, I found myself walking faster and faster, wanting to be there with Stephanie, as if in the back of my mind I knew it didn’t matter what I thought about the whole experience of being there and seeing her like that, wrapped head to toe on beeping machines of every sort. What mattered is that she wanted me there, and, suddenly, I wanted to be there.
While she is sleeping, we, as the family, have had time to adjust–to think about what life will be like for Stephanie and Christian and their children. We’ve formed opinions, thought about all the possibilities, ramifications, choices, difficulties, and processes they will all face, particularly for Stephanie. There are countless decisions that she and Christian will need to make together. So much of her recovery is still unknown, and we are so encouraged and hopeful by every report, but it is a long road of progress and setbacks, and we have to be patient. We. Have. To. Wait.
Through all of this, I kept thinking of all the possible outcomes. All bandaged, without a medical degree or crystal ball, I couldn’t tell. Will she be able to tie little shoes again? Pick up children? Make a meal? Type? Paint? Turn the pages of a book? Make a craft? I asked this really energetic nurse, after I listened to her give this week’s update. I knew she not only had the experience and knowledge of a seasoned nurse, but that she had compassion and real love for each one of her patients. I knew she could answer my question in a realistic way, so I asked her what the most likely outcome would be for Stephanie. I was expecting a specific list of what she would and would not be able to do, but what I got was a 30 minute explanation that has changed my way of thinking.
She explained that there’s no way of knowing what the future will be, and that, basically, I was asking the wrong question. She spoke of other burn victims, how well they’re doing now, what they’re doing now, the successes and happiness they’ve expressed to her. She told me that everything is different now and that things will never be the same. Ever. If we, as her family and friends, are constantly comparing her to the way she used to be, then we’ll never be satisfied. It will never be enough. If, however, we compare her to how far she’s come, each step of the way, and see the miracle that her body is in surviving and changing, then each success will be a leap, not an inch, forward from a devastating moment. If we say, Look how much better she’s doing since September!, we’ll be encouraged. Or, at Christmas, if we say, Look how amazing she is since Halloween! , we’ll find joy in her success, not frustration. It reminds me how the Clarks, on the 4th of July, always say, Before you know it, there will be snow on the mountains, and it will be Christmas! and on Christmas say, Before you know it, it will be hot and we’ll be celebrating the 4th of July! It’s right around the corner! We laugh about it, but we’re always really thinking that. From holiday to holiday, that’s how we mark time.
I’ve been thinking about how I mark progress and how often my perspective, although linear, is off. I’m frustrated when I think of the ideal in my head, whether physical, spiritual, mental, or even emotional. I think I have unrealistic expectations sometimes, mostly in how fast I think I should be progressing. If I evaluate myself in terms of an ideal, I will never feel a period of rest or success. When I look at myself, in all aspects of life, all things considered, from a different perspective of several years ago, a few years ago, or a month ago, and allow myself to see how far I’ve come, then I can see it. I can see what difficult experiences have taught me–what knowledge they’ve given me and what incredible value they hold for me. And any progress, no matter how slow, is progress. But. I. Have. To. Wait.
I spoke with two of my sister in-laws whose fathers both died when they were young, and Topher’s grandma who lost her husband when she had a house full of little kids. They all made the same four points, individually, to me this week: 1. We all have tragedy in our lives–no one escapes it. 2. Looking back, I can see so many blessings coming out of the tragedy. 3. We were meant to help each other amid tragedy, and 4. We can be in the middle of a tragedy and still be happy. Somehow, these points help me see how far Stephanie has really come, and how truly inspirational her healing is. It makes me think that when we think we’re waiting, we’re really progressing.



123 Pieces of Opinion:
lovely, lisa.
Very insightful, and very true. Looking back to see where we've been and how far we've come will always feel better than wishing, wishing, wishing we were further ahead. It is the absolute truth, and keeping that perspective will help us all feel better about our progress. And when we feel better, we're more able to keep the momentum up and move forward. I'm certain that is how it will be for Stephanie, and she has a terrific support team that will cheer her every move.
Thanks for your insights.
Exactly.
It couldn't have been said better, I think anyone who's experienced "tragedy" and learned from it, knows exactly this sentiment.
It truly never is about the destination, it is always about the journey ... if it's about the destination we'll never get there. Just exactly what was said about holding yourself to the model instead of looking where any of us have come from a month ago, a year ago, etc. Such truth!
This is so true and so beautifully written!
My husbands father died 19 years ago and this left my mother-in-law with 5 little kids when she was 35.
She often regrets certain things about how she taught her kids but I always tell her that she raised 5 awesome kids who turned out really great and that she did it all by herself. Well, almost if we count the angels and the Lord with. :)
One thing I heard once is that angels are not only the ones that are dead and around us but also the living that surround us. And Stephanie and Christian can be so happy to have so many angels around them.
In Germany we say 'If the word if wouldn't be there my dad would already be a millionaire'. Woulda, coulda, shoulda... We live in the present and live for the future. Of course it is also important to look back at times to learn but it will only bring you further if you live in the now and tomorrow.
courtney, your blog is the first i hope to be updated in my blog reader. :)
much love from Sweden.
Thank you so much. Keeping our perspective and just doing a tiny bit better every day is huge. I am grateful to be reminded of that as I check in on your family.
I just learned a whole lot.
Thankyou!
very poignant. thank you for that. everyone can use a little insight and perspective. ;)
Amen
Thank you for sharing this with us. I have learned so much and to you I am thankful.
You all continue to be in my prayers and thoughts.
gorgeous post. ~ love frm singapore
Thank you for a beautiful post. This is something every woman should internalize.
I think of Stephanie every day. Thank you to your family for helping my spiritual alignment.
you are a special family. thank you for sharing your valuable lessons with us. they mean so much. much love from the netherlands.
thank you for sharing this
That was an amazing post Lisa and helpful to everyone going through the roller coaster of life. My prayers are with you all.
Simply beautiful!
this post truly touched me. it provided so much of the comfort and perspective that i, as a fan of stephanie (and your entire family), have been looking for since this all began. i think we've all been wondering about expectations and the future, so thank you for sharing this personal information with us. i sighed a huge sigh of relief as soon as i was done reading your post. though the road is going to be long and hard, i now have a perspective on the situation that i didn't before.
love to your family, as always. you are all wonderful and your examples have a daily impact on my life.
much of the time progress is "holding steady." having said that i think we should all love ourselves a lot more and embrace the notion of "staying true" to what really matters. that is real progress. xox
This is such an inspirational post. It helps in my prayers for Stephanie and Christian and family, but also helps me in my daily life with the situations I am in. Thanks Lisa.
Wonderful perspective ;-)
thank you so much for sharing this. i know we are all wondering....and this gives answer to our own questioning minds. from far away, we wonder. now we know. it was illuminating, poignant. the situation is heartbreaking and life is different. but in the short time i've been "with" you all, oh, the miracles! your sister has so much support and love and certainly everyone will envelop her with the love borne of the right expectations and the new normal. she is sooo fortunate to be surrounded by a large and loving family and network of friends far and wide. thank you again for sharing the post that addresses our collective, unspoken question.
Amazing and so true. Your families are also amazing. Thanks for your truthful insight into stephanie,s recovery. Your family is blessed with many compassionate people in it. She will need you all.She is lucky to have you all.We are lucky to share from you.
Much love Karan
Wow - thank you Lisa, and Courtney, for that post. You are so correct.
Perspective is everything.
God bless you and your family.
Always in my prayers, Em
What a wonderful point of view! So powerful and healing! Thanks for sharing!
This is one of the most beautiful and insightful blog posts I have ever read.
Thank you. That is exactly what I needed to hear. I have a lot to think about and digest. Thank you to your family for being so open with this. You are touching so many lives for good.
Thank you so much for this post. You made some wonderful points that his close to my heart.
Praying for healing and peace.
take care.
Such wonderful perspective! Thank you for sharing so we may all learn a little more. I hope I'll be able to apply this to my everyday life. Continued prayers for recovery for your whole family.
Beautiful commentary. Thank you so much!
SB in Michigan
Thank you for sharing your beautiful insight.
I'm so glad you re-posted this. I read it the first time and was truly touched.
My mother had a 24 year battle with a malignant brain tumor and this is a perspective I wish I had had then. Though her recovery was amazing (repeatedly) it was so hard to avoid thinking about life "before" and feeling sad. Looking at the progress is a simple way to see the miracles associated with our major trials.
Thank you again. I continue to pray for S$C, and anxiously look forward to the reuniting of their family. My heart is with you all.
Thank you for that, it is what everyone needs to hear. It is all in the journey...
Very poignant. Waiting and progressing all at the same time. It is really a very comforting thought. Thanks for sharing. We are continuing our prayers for your family and for the healing of the Nielsons.
thank you Lisa....this story (all of it from before August until this morning) is for ALL of us.It is for us to learn from, and reflect upon. It is sad that such an outwardly beautiful girl had to teach the lesson, but what unfolds from it is a heavenly lesson for us. The inner beauty of Stephanie, Christian and all of you is the light that shines for us to see.It is not fleeting like a picture of a beautiful woman, it is eternal forever stamped upon our hearts, to scar our lives in a possitive way. I thank God for such a gift, and pray that His mercy will envelope Stephanie with acceptance, peace, rebirth and finally joy.
Blessings to all of you
~Donna ( the obtundia girl)
Wonderful post. I am truly going to keep this in mind as I go through my days...I will remind myself that life is not about how far I have to go, but rather how far I have come. Such a simple concept, but somehow it has eluded me. Thanks so much for giving me my own "wake-up call." I pray for your family as you prepare for Steph's.
Thank you for the insight. This will stay with me.
In respect to my everyday life, I am constantly comparing myself to what I ((was)) and always falling shiort of when I was younger, thinner, etc...
---------------------------------
This post has changed me. From now on I will be all about progress. Your lesson is a good one. ----------------------------------------
Although your S & C may never be the same, thier lives are a testimony as to how good God is, the love of your family and the prayers of thousands of people like me who think about them and pray for their recovery every day.
Thank you.
I have been keeping track, loosely, of Stephanie's progress and am so touched by you and your family's gifts of time and service to her children. I have three children with a fourth on the way and know what it would mean to me to have family caring for my children if I couldn't. Thank you for your example.
I also noticed, and am surprised I didn't earlier, that you are married to Chris Kendrick! He was Moose in Kels Goodman's "Handcart". My husband wrote the music for the movie. What a small world.
Anyway, again, thank you for the updates on Stephanie & Christian and thank you to all of your family for the wonderful examples you all are.
Thanks Lisa, I am going to start using that perspective when evaluating my life, my family... Your words have touched so many, thanks for sharing!
Beautiful perspective.
Wow...beautiful and enlightening. I pray for the Nielson's and your family each day.
Lisa, I can't thank you enough for your insight and for sharing. We've all been feeling a bit of the same...worry, expectant, hopeful, for The Nielsons and indeed your whole family. Your post has reminded us of a lesson that can be applied to all aspects of all of our lives: sometimes You.Have.To.Wait. THANK YOU
That was amazing and some how in your time of trial and pain you have brought peace to me in my seemingly little trials....I will try to look at how far we have come and try to keep moving forward. THANK YOU!!!
Just wonderful.
I come here to follow up with your family - to offer my prayers and hope for you. Somehow, I always leave with something for myself and my family.
Thank you for this lovely post. It speaks volumes to me.
This is spot on and very insightful. When I was younger and more foolish I went to visit my great aunt in the hospital wing of her assisted living facility after she had broken her hip. She was very positive and energetic, discussing her recovery plan, and I remember thinking "how can she be so cheerful? She's in her eighties, she has a broken hip, she's living in this place ..." But then I looked at some lost-looking, hunched-over elderly people in the hall outside her room and I realized that the difference between them and my great aunt had 100% to do with her attitude. She wasn't looking back and wishing she hadn't broken her hip or that she was younger, she was looking forward into the future with determination and positivity. That was an important realization for me and I have tried to remember it at difficult times.
Wow, what a good perspective to view life from. Not just in this situation, but in all challenges we face.
Thanks for sharing this.
Such beautiful words...what a lovely way for me to start the day. Visiting your blog always helps keep things in perspective...
This is such an amazing post; your family is amazing to me. My son survived a burn almost three years ago, he is not the same boy that he was, and no one in our family is the same person they were before the burn. It is something that has forever changed our family. The accident has made my son into the person he is today, he is more compassionate, caring, and has total trust in the Lord. He knows that he has a purpose in life, and he is always trying to live up to his potential. Each milestone we look back and see the progress in him, we watched him brave the ridicule of kids at school, the stares of strangers in stores, the mean comments made by those who did not know the circumstances. And now I can see him hold his hand out to other children who have been burned and he shows his scars and talks openly about the pain and torment he had to endure, but he also tells of the peace he feels as he turns the other cheek and forgives those who have hurt him. My son has not let his accident define him, he is defining the accident. This is what S & C will continue to do. They are fighters and have a great support system which will hold them up when they feel like they can’t go any farther.
We will continue to pray for a swift recovery.
There is always a "before" and an "after", remembering to cherish the difference is so important and difficult. This was a beautiful post, thank you!
Steph will emerge like a beautiful butterfly from her cocoon - never the same - but just as beautiful.
Thank you again for sharing this journey with us.
What a beautiful post. It is good that your family has time to understand what Stephanie faces, and to prepare yourselves to accept some hard realities, so that when the time comes for her to face them, you will be strong for her.
She has always been someone who has seen beauty. There is beauty where she is, too. She will see it.
Perfect. Just what I needed to hear. Thank you thank you!
Exactly what I needed...THANK YOU
Thank you so much for sharing your insights on this. Sometimes it can definitly be frustrating to wait but looking at it from that perspective makes things a little easier.
I am humbled by the wisdom. Thank you all for your continued sharing. While we walk beside you, know you are in our constant prayers. Maybe part of Stephanie's journey is to heal ALL of us who read these posts. I will feel forever changed because of it. XXX Annelies
Thank you for putting this in words Lisa. It summarizes many of the feelings and thoughts I've been having in the past 2 months. My husband was in a plane crash himself just shortly after Christian and Nie. His outcome has been less of a waiting game than their as he suffered only two broken legs and a small burn on his right leg. We have felt incredibly blessed and I have tried many times to communicate some of the lessons I've learned through this. I have been unable to do so personally and I thank you for doing it for me.
Love and prayers to you all.
I too want to thank you for your meaninful words...which apply to ALL of our lives. I try to think with this perspective but, often need a reminder that my vision is off. Your post helped me refocus.
It is will the love and support of family that Stephanie and Christine will be able to have this same perspective.
Oh that was just amazing; thank you.
Wow, Lisa has hit it right on the spot. I am a friend of a friend of Stephanie and Christian, and I have been following this blog since the accident. This blog has partly helped my healing process as I have learned so much from your family. You see, two and a half years ago my husband suddenly came down with a very severe brain infection. He was in and out of a coma for almost 3-4 months, hospitalized for 5 months. He wasn't suppose to live, and if he did the prognosis wasn't good. He couldn't talk, think, write, eat, and was paralysed in both legs and the left side of his body, etc. They pretty much told me to expect him to not ever function again. This was hard for our family,and for me as a young mother of two little boys who had her whole life planned out. My dreams seemed to be shattered. However, we really learned to trust in the Lord. My husband (Grant) did live, but it has been a hard long journey thus far. He has had to relearn how to do EVERYTHING, but he is doing it! I agree with Lisa, life will never be the same again, Never. But that isn't necessarily a bad thing. Dreams may seem to be shattered but they are just changed to benefit us according to what the Lord has in store for us. Testimonies are strengthened, we develop more Christ-like attributes during the hardest of trials. Our relationships are strengthened, with other and with Heavenly Father. Looking back and comparing life to what it was before or to how "he" use to be only hurts and creates discouragment. Yes, my husband is way different than before, but we have a new life together and we have learned to accept the changes. Yes, people stare at us in public, people treat him differently than before, but the Lord has strengthened us through this and we are HAPPY. We must look forward and be happy and only look back to see the progress. We must be strong in our fight to return to Heavenly Father. Yes, sometimes I feel sooo sad as I remember some fun memory from before the illness, but I have never been so determined to live the Gospel and to have an eternal persepective on life. Thanks for sharing your story and thoughts with so many of us. You have gotten me through hard days, and I just pray that through our own trial we have done the same for others. (sorry this was so long.)
Lisa, you could not be more right. It is all about perspective. Everyday is one step at a time. The love and compassion that seems so intrinsic in this family really resonates with me. Amidst all this sadness and uncertainty, all you can do is continue to bless each other. It is definitely a lesson we can all learn.
Ashley
It's true, but I have such a hard time wrapping my head around it.
Thank you Lisa for these beautiful thoughts on perspective. I know this post will be in my thoughts for days! Very insightful and true!
Wow Lisa, thank you. That was so well written, and so applicable to so many parts of my own life. I really appreciate your words of wisdom. Perspective is a great thing.
This is a beautiful post! I have enjoyed your thoughts on light refreshments, as well.
I wanted to share one of my favorite quotes
PEACE - it does not mean to be in a place where there is no noise, trouble or hard work. It means to be in the midst of those things and still be calm in your heart.
(author unknown)-
I wish you and your sweet family much PEACE as you wait for your sleeping sister to join the adventure once again.
Our prayers continue for these beautiful strangers and those that love them most.
Beautiful post! Perfectly said. Something that we all need to learn and take into consideration.
Beautiful Beautiful Beautiful!
It was so important for me to read this today. Thanks you so much, Lisa, for blessing me while you share your loving and hoping and waiting process with the world.
My prayers follow you people around everywhere.
xo
Thank you for the words I needed to hear today. What a beautiful post. Sending lots of love and prayers to all of you --- Jacqueline
Thank you so much for sharing! What a beautiful post! I needed to hear that today! My thoughts and prayers are with your family!
So beautifully written, thanks for sharing this wonderful perspective.
I've been keeping up with you all, but this post and the one right before about Mary specifically has touched me.
An amazing gift that Christ has given us is the ability to be peaceful and happy in times of struggle, because of His love for us and the fact that He can and has taken our burdens.
Sometimes we meet mortal angels who make our lives easier when we need it the most. I am so glad that you can have more time with your sister because The Chief can be comforted by your angel. I hope to be that type of person for someone else.
WHAT A WONDERFUL POST!!!!!
Wendy
(Mommy to 6 Cupcakes)
This was awesome! I've been pondering this for awhile and it has crossed my mind in regards to Stephanie. Though we all love to see her vegetarian plates, finely cute silhouettes, and cute vintagey outfits, it's really her testimony that is shining through these posts and manifesting who she is. Most of us can do some sort of crafting, cooking, or stylin', but there isn't anything special or testimonial about it if our hearts aren't in it. Here's to hoping (and praying) Stephanies spirit stays strong and her heart heals faster than her body.
thanks for that. it was beautiful.
Wonderful perspective for Stephanie and all.
I wish I had met that nurse 10 years ago, when first diagnosed with a chronic illness. It's so true that as long as I compare my life to what it was pre-illness (or perhaps my idealized version of my life pre-illness), or what "normal" people can do, I'm unhappy. But if I look at the progress, all my blessings, and what I am able to do, I'm so happy and grateful. Really puts things into perspective
Great insight and has me re-considering what how I deal with Life's challenges. Thank you for posting! Very thought provoking. Thank you Lisa!
Praying here in San Diego for you all...as always.
Thank you Lisa... that was beautiful. I am so grateful for all of the posts on this blog. It inspires me daily. You are always in my thoughts. Much love!
very beautiful, thank you
Very inspirational writing -- it really makes you think. Very sweet.
Lynne O.
Illinois
Beautiful. Thank you so much for sharing.
What a wonderful chance that you were able to speak with that nurse. Her 30 minutes of counsel to you will help so many of us all our lives.
Reading your post, I realized that one way to view S's progress is as a kind of resurrection. That way, the hard challenges ahead become symbols of rebirth--not disappointments.
That helps me. I know you didn't mean to, but thank you.
What beautiful words for us all to learn from...
Its amazing the words that come from ones heart that can enlighten another....
I saw this story of how a life can take shape and had to share it with you and hope it gives you comfort along your journey.
When a tree is struck by lightning if it survives, its growth is altered. A knot may form where the lightning hit. The growth on one side of the tree may be more vigorious than on the other side, the shape of the tree may change. An interesting twist or curious split has replaced what might have otherwise been a straight line. The tree florishes; it bears fruit, provides shade, becomes a home to birds and squirrels. It is not the same tree it would have been had there not been a lightning storm, but some say it has much more interest.....
That was phenomenal...should be a conference talk or Ensign article. I'm printing it out as a personal reminder. Thank you!
Beautifully written! I really needed to read that today. Thanks,
Lisa!
I have been thinking of expressing something like this to you all, but this is said more eloquently than I could. When someone is ill, in the minds of those around there is the end, the point when it will be "better." And, it will be better, but it will never ever be the same, and comparisons to the past will not be helpful. My sister was diagnosed with a serious mental illness in her 20s and was essentially lost to us for many years, she is back now and I am grateful every day, except those days where I let myself think of what might have been. That thinking is not helpful or healthy. She struggles with it too. I'm sure Stephanie and Christian will also.
Beautiful. Touching. Thank you for that. "Spiritual Inspiration Here"...that's what I think Stephanie would name this post.
I hadn't commented yet, since finding my way to your blog some time ago...but this post compels me to.
What wonderful perspective on the travails and travels on life's path that we all undertake and yet rarely see as clearly.
Thank you for the amazing post.
Patience IS a virtue.
Reading Stephanie's blog has helped inspire me to be a better woman and a better wife. I cannot wait until she is back with us to offer more guidance by way of her example.
(You are all picking up wonderfully when she is resting, though.)
I am not a religious person - my parents were not, and so I did not learn how to pray and have not attended church on a regular basis. But...I can tell you that I hope and will and do what I call pray, that your family will all be back together and that Stephanie and Christian recover soon.
With hugs,
Tamara
The nurse gave wonderful insight and so have you.
I'm sure your family has heard a million success stories of burn victims coming through great adversity, but please indulge me a bit....
My nephew was 12 when he developed a severe burn from Stevens-Johnson Syndrome. Basically, this is a severe allergic reaction to an antibiotic leaving the patient with thrid degree burns. They may be inside (on tissue and organs) and outside (on your skin). If you get the burns internally in your eyes, you become blind. Serious stuff.
The burns covered 93% of his body externally. He had them internally and they were progressing upward when they stopped just under the bridge of his nose--just shy of his eyes. He was spared blindness. This amazing young boy suffered horribly through mercury baths and the surgeries stapling pig skin to his own tissue, infections and more grafting surgeries.
Everyone could do the math 93+12 (almost 13)=....
Miracles happen every day. God is great. And they happened in my family.
Our nephew is an amazing young man who leads a very full life. He is a senior in college and to meet him, you'd never know he'd been sick and through the burn trauma. He's a fair-skinned read-head who wears sunscreen all the time, but there is minimal scarring and well, who cares? He's here and he's amazing.
Activity limits for him? None. He rehabbed with a passion and even went on to be a state "Mr. Hockey" finalist his senior year in high school.
Continue to think of the future, not the past. What Stephanie and Christian will do much more important.
Truley amazing insight. I need to ponder on it for a while to truely help me to see life this same way.
Since reading of NieNie in the NY Times write up I realize I have been waiting to read of her outcome amid all of the amazing support, prayers and love. The reflection of her past blogs made me wonder how she will ...compare to her former life. Thank you for redirecting prayer, energy and love to where it belongs: in the glory of Healing, in every sense of the word. I hope this blog is shared again and again in the months to come.
M
That is so true! Hard times always bring lessons, the lessons we are meant to be taught! Everybodys are different. Sometimes I wonder why things happen but then I stop myself and remember that there is always a reason. We need to be greatful everyday and be thankful for what we DO have and what we HAVE accomplished. I know that if Stephanie were awake and talking right now she would be telling how grateful she is for her healing progress and so thankful for those taking care of her and her family. I picture her being so strong and positive through all of this! She is such a strong person and WILL get through this.
That was beautiful and insightful. Thanks!
I don't really know how I came across your blog but I have been compelled to read it all afternoon.
If love and prayers count for for anything then your sister's recovery will be strong.
Thank you.
Such beautiful words. Lisa, thank you for sharing your experience and perspective.
no wonder your husband is mad for you! you are lovely and very sensible. barbara
I am a firm believer that patience is an active state of being. What a loving Father in Heaven that even our trials are ultimately for our own good.
CJane: every time I read about Stephanie and Christian, I think about Lauren and Greg Manning. Lauren, you may know, was burned over 80% of her body at the World Trade Center on 9/11. She and her husband wrote a book titled "Love, Greg and Lauren: A Powerful True Story of Courage, Hope, and Survival. It is supposed to be a wonderful book, and I wonder if it might help with both progress and perspective.
Praying for All,
Nancy from TN
cjane, I know you have mentioned a little bit of this in past posts, but I wondered if you could talk some more about your "plans" for when Stephanie wakes up. Do you think she will remember what happened? How will you catch her up on all that has happened around the world in support of her recovery while she's been sleeping? What do you think she will think, or say, or want to do?
I hope I am not asking too many personal questions.
Your family is so full of talented, inspiring, wonderful people! I loved these words, what a valuable lesson. I will remember it.
Always good to hear your perspective.
Also, you are beautiful. Does anyone have a prettier mamma? No, I think now.
I think it is important to remember that while the family continues to upcdate us on what is happening with Stephanie, this is still a person's LIFE..not a tv show. As much as we might wish it different, we aren't entitled to all the details. I know it doesn't seem like asking questions like "what are you going to do when Stephanie wakes up" are invasive, but they are. The family gets asked them ALL THE TIME. They will tell us what they want to tell us, when they want to tell it.
Let's all remember to be a little bit sensitive to the fact that her kids and other family memebers are trying to walk a fine line between protecting things that are private and sharing with all of us the progress of Stephanie's recovery. Stephanie should be allowed to experience these things FIRST before the world hears all about it. What made us love the Nie blog was the glimps into her family, but since Steph isn't able to make these choices for herself right now, she needs to be protected a little bit. Think about it, would you tell a STRANGER how you planned to tell your child they are adopted or that you are getting a divorce (or insert any other very difficult, emotionally charged and potentially life changing thing here) before you told THEM??
THey will likely do what all the any of us would do. Be prayerful. Be kind. Do what feels right and watch her for what they think she can handle.
So, I am sorry if this seems harsh, but we have had a similar type of situation in our family. It is terrible when people keep asking those kinds of questions. So, I will be the one to say it. Stop asking. It IS too personal. Please.
Signed,
a friend of the family who took it upon herself to say what they have so far been too polite to say.
oh thank you so much for this post. i've been waiting for these words!
wow! that is beautiful!!! i love your family and i am soooooooo thankful for your examples! I love reading nie's blog, it makes me a better person....and find beauty in everything around me. thank you!
After reading this post it made me think about the Oprah show today. She had the Dr.,woman, and author of "A Stroke of Genius." She's a brain scientist and suffered a stroke. It took her 12 years to recover. She and her family said goodbye to the person of the past because she was different. She was healed and it took 12 years, but she's not the same person. The way she said it was so good. You can probably see the show online, and definitely the last paragraph of her book will move you. I believe it can give you insight into what your family is dealing with.
Thank you for helping ME keep life in PERSPECTIVE!
Wonderful post! I just recently started following this story.
Thank you again for such beautiful words from your family members as well. Working in the hospital and having to explain to a family member "when will they get better?" has always been hard for me. I just want to hug them and tell them that everything will be fine, but not always the case. So I just embrace them and tell them what I know and they appreciate the honesty. We strive our best as nurses, we are caregivers, we want to heal our patients. I love being a nurse. I know they love your sister so much! I do not work in a burn center and I can only imagine, those nurses are truly angels from God. You have to be a very special person to work in a burn center. I have had my thoughts though after reading Nie. In the back of my mind. Maybe someday!
Oh such a beautiful post. And to Joanna...I'm sorry for you..that post in regards to your questions was a little harsh but I'm sure it wasn't intended to be that way. I hope you're not taking it too personal.
Afterall, it was Stephanie and Courtney that invited the world into their lives and in return we are ALL better people. Let's focus on that and try to keep this blog happy and positive. In the spirit of Nie and this whole Clark family, let us choose to focus on the beauty.
Again, lovely post.
WOW! Thanks for that and how it applies to my own life. But, I bet it is hard to realize that your dear sis-in-law will not be the same. It's a bitter sweet reality that you all face. You'll miss who she was, but are ready to embrace who she will be...
"when we are waiting we are really progressing". Words that will stick with me for a long time!
♥Jen
This is an amazing post. So eloquently expressed. What an important lesson you are teaching us through your own personal experience. Thank you so much for sharing your insight Lisa. Your family continues to be in our thoughts and prayers. ~ K
"While we are waiting, we are progressing". I will always remember that. Thank you. Perfectly said!!
This is fantastic and so applicable to everyone on the planet. Thank you for sharing.
I know this is comment 116, ridiculous to make, but I felt that I wanted to tell the author that her thoughts were beautiful. I really believe that this is one of the IMPORTANT lessons to learn while on earth. Thank you.
Beautifully said. Thank you!!!
I loved this post. :)
this was beautiful. couldn't have been said better.
thank you for sharing.
xo
n.
I hope that I can always carry your beautiful words in my heart. Thank you for reminding me of the power of perspective, the futility of "why" and the blessings of friends and family.
amen to you and your family and to all of us who are enlightened and helped by reading your so wonderful post ... thank you and may the lord bless you and your family and all of us ....
I feel that I am imposing, but I just want to tell you how inspiring your family is and what a great spirit Nie has shared with the world. I only recently discovered your blogs and they have been so uplifting and insightful, what an amazing person she is - and what an amazing support group you are for them. I can't thank you enough for the inspiration you have brought into my life. My thoughts and prayers are with all of you.
I lost my brother in a auto accident Oct. 2007. I would give anything for him to still be with us now. He was my only sibiling.I just happened on your blog today.I read your sister's blog also. She seems like such a beautiful person.I am so glad you still have her with you today.Your family is in my thoughts and prayers.
Dee Ann in Kansas
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